This project is funded by the Australian Government Department of Health and Ageing under the Encouraging Better Practice in Aged Care (EBPAC) initiative.
Research Update/Outcomes
Carers Booklet
This booklet contains important information for past and current carers about end-stage dementia.
Coordinator’s Handbook
This handbook is aimed at assisting Coordinators to gain an understanding of how to work in partnership with the person with end-stage dementia and their families.
Arising from conversations with a number of carers and people living with dementia, this document aims to capture the uniqueness of each journey, while exploring the shared experience. This cohesive set of personal stories comes together as a balanced narrative that explores the good, the bad and the brilliant along the way. It should be read by all people touched by dementia, and even those who are not.
Many Carers say that they sometimes experience a sense of isolation – that those around them, family and friends, can’t quite ‘get’ what it is that the Carer is going through. Carers we have spoken with said that they wished there was some information available to their family and friends that would help them understand and better support the Carer. Here you will find information and practical ideas to support a Carer in their important role.